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我想告訴大家的是,為什麼很多線上健康計劃會失敗,我認為最主要原因是我們不再傾聽病人說話。我們在Radboud大學做的一件事是指定一個主要傾聽人員,這不是非常科學的方法;她倒了一些咖啡或茶,問病人或他的家人和親戚們,「最近好嗎?我們可以給你什麼協助?」我們認為其中主要問題之一是,為何全部-或許不是全部,但大部分線上健康計劃失敗的原因是我們不再傾聽。
這是我的WiFi體重機,非常簡單的東西,上面有一個按鈕,開和關,每天早上我都會站上去。是的,我有一個挑戰,如你們所見,我要挑戰減重到95公斤,這台體重機讓事情變得很簡單。每當我站上去,它都會將我的資料傳輸到Google Health(開放性醫療管理平台),我的醫師也會收到這些資料,所以他可以觀察我的體重問題,而不是等到我有心臟病之類的,需要接受幫助時候。但他也可以查詢歷史紀錄。但還有一件事,你們當中可能有人知道,我在推特上有超過4000名追蹤者,所以每天早上,我站上我的WiFi體重機-在我進入我的車之前,人們開始跟我說,「我想你今天午餐要吃少一點,Lucien。」
(笑聲)
但這是最棒的效果,因為這是同儕壓力。同儕壓力可以幫助病人,因為它可用來對付肥胖問題,或用來阻止病人抽菸。但另一方面,它也可以用來使人們離開座位,試著參與具比賽性質的活動,使他們更能控制自己的健康。
下周即將上市,很快就能買到的是這個小血壓計,它可以連接到iPhone或其它設備,所以人們能在家裡測量血壓,將數值傳給他們的醫生,最後與其他人分享,費用大約是100多塊美金。這樣一來,病人可以參與為自己健康把關的工作。他們不僅能再度擁有掌控權,當自己的掌舵者,也對健保事業現在面臨的挑戰有所幫助,像是健保成本劇增、需求倍增等情況。
開發容易使用的技術裝置,並開始將病患納入這個團隊中。你可以透過像這樣的技術裝置參與其中,但也可以透過群眾力量達成。我想藉由一小段影片分享,介紹我們做的一件事。
(音樂)
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以下為系統擷取之英文原文
I would like to talk to you about why many e-health projects fail. And I really think that the most important thing of it is that we stopped listening to patients. And one of the things we did at Radboud University is we appointed a chief listening officer. Not in a very scientific way -- she puts up a little cup of coffee or cup of tea and asks patients, family, relatives, "What's up? How could we help you?" And we think, we like to think, that this is one of the major problems why all -- maybe not all -- but most of the e-health projects fail, since we stopped listening.
This is my WiFi scale. It's a very simple thing. It's got one knob, on/off. And every morning I hop on it. And yes, I've got a challenge, as you might see. And I put my challenge on 95 kg. But the thing is that it's made this simple that whenever I hop on, it sends my data through Google Health as well. And it's collected by my general practitioner as well, so he can see what's my problem in weight, not on the very moment that I need cardiologic support or something like it, but also looking backward. But there's another thing. As some of you might know, I've got more than 4,000 followers on Twitter. So every morning I hop on my WiFi scale and before I'm in my car, people start talking to me, "I think you need a light lunch today, Lucien."
(Laughter)
But that's the nicest thing that could happen, since this is peer pressure, peer pressure used to help patients -- since this could be used for obesity, it could be used to stop smoking in patients. But on the other hand, it also could be used to get people from out of their chairs and try to work together in some kind of gaming activity to get more control of their health.
As of next week, it will soon be available. There will be this little blood pressure meter connected to an iPhone or something or other. And people will be able, from their homes, to take their blood pressure, send it into their doctor and eventually share it with others, for instance, for over a hundred dollars. And this is the point where patients get into position and can collect, not only their own control again, be captain of their own ship, but also can help us in health care due to the challenges that we face, like health care cost explosion, doubled demand and things like that.
Make techniques that are easy to use and start with this to embrace patients in the team. And you can do this with techniques like this, but also by crowd-sourcing. And one of the things we did I would like to share with you introduced by a little video.
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我們車內都有導航系統,也許甚至連手機裡也有。我們知道Maastricht市裡所有自動提款機的位置,我們也知道所有加油站的位置,毫無疑問地,我們也可以找到速食連鎖店。但哪裡可以找到最近的AED(自動體外心臟電擊器),以幫助這位病患?我們四處詢問,但沒人知道,沒人知道現在附近哪裡有可救命的心臟電擊器。
所以我們在荷蘭所做的是請求群眾協助。我們架設了一個網站,請求大家,「如果你看到一個心臟電擊器,請傳送此資訊,告訴我們它在哪裡,告訴我們店什麼時候開。」因為,當然,店家有營業和休息時間。群眾已傳送超過一萬個在荷蘭的電擊器資訊,我們下一步進行的是尋找搭配的應用程式。我們製作了一個iPad應用程式,我們為Layar製作了一個擴增實境的定位應用程式,以找到這些電擊器。當你在一個像Maastricht這樣的城市中,有人倒下了,你可以使用你的iPhone,再過幾個星期,你也可以使用微軟手機找到最近的電擊器以搶救生命。
今天,我們要介紹這個程式,不僅是以程式名稱AED4U(為你),也是AED4US(為我們)。我們想以全世界為起點進行這項工作,請求散布在世界其他地方的同行們,以及同類型的大學來幫助我們,像網路中心般共同尋找及行動,藉由群眾協助,蒐集全球的電擊器資訊。當你度假時,若有人倒下,或許是你的親戚,或站在你面前的人,你就可以找到這個。另外,我們想請求全世界能幫助我們驗證這些電擊器資訊的公司,或許是快遞公司,或有線電視業者之類的,確認這些傳送出的電擊器位置是否正確。
所以,請幫助我們進行這項工作,不僅是試著讓健康更有保障,也試著掌握健康。
謝謝。
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We've all got navigation controls in our car. We maybe even [have] it in our cellphone. We know perfectly where all the ATMs are about the city of Maastricht. The other thing is we know where all the gas stations are. And sure, we could find fast food chains. But where would be the nearest AED to help this patient? We asked around and nobody knew. Nobody knew where the nearest life-saving AED was to be obtained right now.
So what we did, we crowdsourced The Netherlands. We set up a website and asked the crowd, "If you see an AED, please submit it, tell us where it is, tell us when it's open," since sometimes in office hours sometimes it's closed, of course. And over 10,000 AEDs already in The Netherlands already have been submitted. The next step we took was to find the applications for it. And we built an iPad application. We made an application for Layar, augmented reality, to find these AEDs. And whenever you are in a city like Maastricht and somebody collapses, you can use your iPhone, and within the next weeks also run your Microsoft cellphone, to find the nearest AED which can save lives.
And as of today, we would like to introduce this, not only as AED4EU, which is what the product is called, but also AED4US. And we would like to start this on a worldwide level. And [we're] asking all of our colleagues in the rest of the world, colleague universities, to help us to find and work and act like a hub to crowd-source all these AEDs all around the world. That whenever you're on holiday and somebody collapses, might it be your own relative or someone just in front of you, you can find this. The other thing we would like to ask is of companies also all over the world that will be able to help us validate these AEDs. These might be courier services or cable guys for instance, just to see whether the AED that's submitted still is in place.
So please help us on this one and try to make not only health a little bit better, but take control of it.
Thank you.